I should just give up on post titles - they all run together after a bit.
As much as it bothers me when people look at us (me and B and the boy) as if we'd grown extra appendages, and they maybe ought to make the sign to ward off the evil eye, it's something that can be understood.
People fear the unknown, and they fear illness, and they fear kids who aren't typical.
What bothers me just as much, though, are the people who are just so overly excited about how spectacularly wonderful he's doing. Because it makes it feel like, you know, they expected a lifeless lump instead of a kid.
And when these are people we know and love, it makes me wonder what they think when they see all those other kids out there who have more challenges than he does. And then on top of it, I have to wonder what they actually think about the few things that really are a problem for Alex, and how that impacts every interaction with him....and it sort of spirals out of control from there.
Because it seems like they can't think of him as a kid. He's a kid with tubes and other issues at best, and he's just a thing you set on the shelf by the door at worst. And I'm really not sure what to think about that.
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Arthur Smith received British Patent
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